There are many different types, or species, of NTM that can cause an infection. Depending on the species you have, your doctor may prescribe you different medicines.
The most common species of NTM is called MAC, or Mycobacterium avium complex. Sometimes, doctors will call an NTM infection "MAC" or "MAC lung disease" because it’s the species most often identified in patients.
Eight out of 10 NTM infections in the US are caused by MAC.
Some other types of NTM include:
If you do start treatment for NTM lung disease, sticking to your treatment regimen is crucial to increasing your chances of testing negative for NTM. You may be prescribed a treatment regimen or referred to a specialist who has experience treating people with NTM lung disease.
You may be put on the guideline-recommended multidrug therapy. This means that you will take more than 1 medication at the same time. These medicines work together to attack the NTM bacteria in different ways. Using more than 1 treatment also helps prevent the bacteria from becoming resistant to 1 antibiotic. Specialists treating NTM lung disease usually treat with 3 or more drugs.
Depending on how severe your NTM lung disease is, you may be required to take your medicine once a day or 3 times a week. Like other treatments out there, you may experience side effects. Visiting your doctor regularly will help him or her monitor how you are responding to treatment and help manage side effects.
You may stay on treatment until your symptoms get better and you have fully cleared all NTM bacteria. Once you get rid of the bacteria, you may need to stay on treatment for 12 more months. This is to make sure the NTM infection does not come back.
Treatment can be long. However, when you stick to treatment and work with your doctor, there is a better chance you could get rid of NTM.
MAC lung disease is diagnosed
Begin treatment after NTM diagnosis
Guidelines recommend a multidrug regimen of at least 3 antibiotics
Guidelines suggest starting treatment rather than waiting for certain diagnosed patients, especially those who have:
Months 1 to 5 after starting treatment
Regular sputum testing is recommended
Get sputum tested every 1 to 2 months while on treatment
Guidelines recommend regular doctor visits and monthly sputum cultures in order to assess whether or not a patient is responding to therapy.
6 months after starting treatment
Assess treatment success at 6 months
Have you tested negative for MAC bacteria?
Guidelines recommend that doctors evaluate if the multidrug regimen is working after 6 months of treatment.
The guidelines recommend staying on treatment for a minimum of 12 months after testing negative for MAC. This is to make sure the MAC bacteria is cleared from your lungs.
*Guidelines developed by ATS/ERS/ESCMID/IDSA.
ATS=American Thoracic Society; ERS=European Respiratory Society; ESCMID=European Society of Clinical Microbiology and Infectious Diseases; IDSA=Infectious Diseases Society of America.
When you’re living with a lung condition, it’s especially important to maintain a healthy lifestyle and limit your exposure to NTM bacteria. That’s because exercise and diet can affect how your body works. Remember, you can always talk to your doctor if you have any questions about your lung health.
Stick to foods that can help minimize inflammation.
Be sure to talk to your doctor or see a dietitian before starting any new vitamins.
This nutrition guide is only a suggestion. You can talk to your doctor or a dietitian if you'd like help putting together a meal plan, or if you have any questions or concerns.
If you find out you have NTM lung disease, you're not alone. People like you have shared their stories in hopes of spreading more awareness about this disease.
Watch patients discuss their journey with NTM lung disease