Talk to your doctor or a specialist about your lung condition and symptoms. Ask if getting tested for NTM lung disease may be right for you.
To prepare for your discussion, use the Doctor Discussion Guide to record the symptoms you’ve been experiencing, your history of lung disease, medical history, and a list of the questions you have. Then, bring the discussion guide with you to your next appointment.
Starting the dialogue isn’t always easy, but this way you know exactly what you want to talk about, and your doctor can have the information he or she needs from you.
If you’ve been diagnosed with NTM lung disease, you may have questions about your next steps, including what to expect from living with NTM lung disease.
Use this Doctor Discussion Guide to prepare for a productive discussion with your doctor.
Ask about your NTM lung disease diagnosis—Download this discussion guide to help start a conversation about your NTM diagnosis and treatment options with your doctor.
There are NTM communities for people like you.
The clinical institutions listed below specialize in respiratory diseases, including bronchiectasis and NTM.
Chapel Hill, NC
New York, NY
New York, NY
This list was adapted from BronchiectasisandNTMInitiative.org (accessed 4/9/2018).
The National Organization for Rare Disorders (NORD) provides a unified voice for those affected by rare diseases. NORD has a long history of providing services, financial aid, and running programs to support every member of the rare disease community, patients, caretakers, and families.