Support and Resources

The resources below can help answer the questions that you and your loved ones may have, whether it’s finding more information about nontuberculous mycobacterial (NTM) lung disease or looking for ways to talk to other people with NTM lung disease. You can also join AboutNTM Support to help you stay up to date and give you additional support.

You are not alone

Magazine icon

The Voices of NTM Lung Disease eMagazine provides helpful insights for all who come in contact with the condition. Stories and tips from patient, caregiver, physician, and advocacy groups round out a community of support.

Sign up for support

AboutNTM support
E-mail communication

Communication

Educational brochure

Education

Shaking hands

Support

Whether you are newly diagnosed or recently diagnosed, it’s important to have up-to-date information about NTM lung disease. Sign up today to receive helpful information, support, and resources, including an NTM informational fact sheet, health and wellness guide, and more.

TELL US

THANK YOU!

What is your preferred method of receiving information?
(Check all that apply)

Stay informed with useful NTM information and resources

Sign up now

Tools and Guides

If you have not been diagnosed

If you think you may have NTM lung disease, it’s important to educate yourself and talk to your doctor about getting tested. The resources below can provide useful information to answer your questions about what NTM lung disease is, who is at risk, and what to expect if you’re diagnosed.

Remember to talk to your doctor or a specialist about your current lung conditions and symptoms, and ask if getting tested for NTM lung disease may be right for you.

If you HAVE NOT been diagnosed, click to download the tools below

Red download cloud icon
Doctor Discussion Guide

Download this discussion guide to record the symptoms you’ve been experiencing, your history of lung conditions, medical history, and a list of the questions you have. Then, bring the discussion guide with you to your next appointment to help you start a conversation about NTM lung disease with your doctor.

This resource is offered in a variety of languages:

Chinese  Korean  Russian  Spanish  Vietnamese  

Red download cloud icon
“Insight”: A Patient’s Perspective

Read this pamphlet from NTM Info & Research (NTMir) for a broad overview about NTM lung disease, including what is NTM, who is at risk, and how it is diagnosed.

To find this resource in additional languages,

Click here

Red download cloud icon
“Could it be NTM?” Brochure

Learn about why your symptoms may be more than just your previous lung condition with this downloadable brochure.

This resource is offered in a variety of languages:

Chinese  Korean  Russian  Spanish  Vietnamese  

If you have been diagnosed

If you’ve been diagnosed with NTM lung disease, you may have questions about how you got NTM and what happens next, including what to expect from living with NTM lung disease and treatment options. Use the resources below to help you learn more about NTM.

To help you prepare for your next conversation with your doctor about NTM lung disease, use this Doctor Discussion Guide. Starting the dialogue isn’t always easy, but this way you know exactly what you want to talk about, and your doctor can have the information he or she needs from you.

If you HAVE been diagnosed, click to download the tools below

Red download cloud icon
Doctor Discussion Guide

Download this discussion guide to help start a conversation about your NTM diagnosis and treatment options with your doctor.

Red download cloud icon
“Living with NTM lung disease” Brochure

Use this guide for a quick overview of the information, support, and resources available to you on your NTM journey.

This resource is offered in a variety of languages:

Chinese  Korean  Russian  Spanish  Vietnamese  

Red download cloud icon
“Insight”: A Patient’s Perspective

Read this pamphlet from NTM Info & Research (NTMir) for a broad overview of NTM lung disease, including the common symptoms of NTM, how to manage living with NTM, and how to reduce your exposure in the future.

To find this resource in additional languages,

Click here

Red download cloud icon
NTM Support Groups Guide

Use this resource as a guide to connect with people online or in the community who are also living with NTM and other lung conditions.

Find a Specialist

If you think you have NTM lung disease, or if you've already been diagnosed, you may want to visit a clinical institution or visit a doctor in your area who specializes in lung disease.

NTM clinical institutions

Click to visit the clinical institutions listed below. Each specializes in respiratory diseases, including NTM.

EAST COAST

University of Miami >

Miami, FL
305-243-6387

Mayo Clinic >

Jacksonville, FL
904-953-0853

National Institutes of 
Health (NIH) >

Bethesda, MD
301-496-4000

Georgetown University >

Washington, DC
202-444-8830

University of 
Pennsylvania >

Philadelphia, PA
800-789-7366

Columbia University >

New York, NY
877-426-5637

New York University >

New York, NY
646-929-7845

University of 
Connecticut >

Farmington, CT
844-388-2666

MIDWEST

National Jewish Health >

Denver, CO
877-225-5654

University of Chicago >

Chicago, IL
773-702-1000

University of Texas 
at Tyler >

Tyler, TX
903-531-8890

Mayo Clinic >

Rochester, MN
507-538-3270

WEST COAST

Oregon Health & 
Science University >

Portland, OR
503-494-1620

This list was adapted from BronchiectasisandNTMInitiative.org (accessed 4/9/2018).

Doctor finder

Click the links below to help you find a specialist.

Helpful Websites

The below organizations offer information and helpful resources on NTM and other lung conditions.

A non-profit organization that provides patient support, medical education, and research about NTM lung disease.

The American Thoracic Society Public Advisory Roundtable (ATS PAR) is a partnership with organizations representing people affected by respiratory diseases, sleep-related conditions, or related critical illnesses. ATS collaborates with them to advance shared educational, research, care, and advocacy goals.

The American Lung Association leads the fight for healthy lungs and is America’s trusted source for education, research, and support for lung health.

A non-profit organization that helps to improve the lives of people with COPD and NTM lung disease through research, education, and advocacy programs that will hopefully lead to a cure for this disease.

Learn more about your COPD with the COPD Learn More Breathe Better® program. This program helps raise awareness and understanding of COPD, and provides educational resources.

Rare Disease Information

The National Organization for Rare Disorders (NORD) provides a unified voice for those affected by rare diseases. NORD has a long history of providing services, financial aid, and running programs to support every member of the rare disease community, patients, caretakers, and families.

Sign Up For NTM LUNG DISEASE INFORMATION

Interested in receiving helpful resources, support, and information about NTM lung disease?