Support and Resources
Voices of NTM Lung Disease
Voices of NTM Lung Disease eMagazine provides helpful insights for all who come in contact with the condition. Stories and tips from patients, caregivers, physicians, and advocacy groups round out a community of support.
Listen to NTM experts discuss NTM lung disease
Physicians in the field share their clinical experiences with NTM and what patients can expect from diagnosis to treatment.
Sign up for support
Whether you are newly diagnosed or have been living with this condition for some time, it’s important to have up-to-date information about NTM lung disease. Sign up today to receive helpful information, support, and resources, including an NTM informational fact sheet, health and wellness guide, and more.
Tools and Guides
If you think you may have NTM lung disease, it’s important to educate yourself and talk to your doctor about getting tested. The resources below can provide useful information to answer your questions about what NTM lung disease is, who is at risk, and what to expect if you’re diagnosed.
Remember to talk to your doctor or a specialist about your current lung conditions and symptoms, and ask if getting tested for NTM lung disease may be right for you.
If you HAVE NOT been diagnosed, click to download the tools belowDoctor Discussion Guide
Download this discussion guide to record the symptoms you’ve been experiencing, your history of lung conditions, medical history, and a list of the questions you have. Then, bring the discussion guide with you to your next appointment to help you start a conversation about NTM lung disease with your doctor.
This resource is offered in a variety of languages:“Could It Be NTM?” Brochure
Learn about why your symptoms may be more than just your previous lung condition with this downloadable brochure.
This resource is offered in a variety of languages:
If you’ve been diagnosed with NTM lung disease, you may have questions about how you got NTM and what happens next, including what to expect from living with NTM lung disease and treatment options. Use the resources below to help you learn more about NTM.
To help you prepare for your next conversation with your doctor about NTM lung disease, use this Doctor Discussion Guide. Starting the dialogue isn’t always easy, but this way you know exactly what you want to talk about, and your doctor can have the information he or she needs from you.
If you HAVE been diagnosed, click to download the tools belowDoctor Discussion Guide
Download this discussion guide to help start a conversation about your NTM diagnosis and treatment options with your doctor.“Living With NTM Lung Disease” Brochure
Use this guide for a quick overview of the information, support, and resources available to you on your NTM journey.
This resource is offered in a variety of languages:NTM Support Groups Guide
Use this resource as a guide to connect with people online or in the community who are also living with NTM and other lung conditions.
Connect With Others
Click to explore NTM communities for people with NTM lung disease.
Find a Specialist
If you think you have NTM lung disease, or if you've already been diagnosed, you may want to visit a clinical institution or visit a doctor in your area who specializes in lung disease.
Click the links below to help you find a specialist. Find the full list of available NTM research sites here.
The below organizations offer information and helpful resources on NTM and other lung conditions.
A non-profit organization that provides patient support, medical education, and research about NTM lung disease.
The American Thoracic Society Public Advisory Roundtable (ATS PAR) is a partnership with organizations representing people affected by respiratory diseases, sleep-related conditions, or related critical illnesses. ATS collaborates with them to advance shared educational, research, care, and advocacy goals.
The American Lung Association leads the fight for healthy lungs and is America’s trusted source for education, research, and support for lung health.
A non-profit organization that helps to improve the lives of people with COPD and NTM lung disease through research, education, and advocacy programs that will hopefully lead to a cure for this disease.
Learn more about your COPD with the COPD Learn More Breathe Better® program. This program helps raise awareness and understanding of COPD and provides educational resources.
Rare disease information
The National Organization for Rare Disorders (NORD) provides a unified voice for those affected by rare diseases. NORD has a long history of providing services, financial aid, and running programs to support every member of the rare disease community—patients, caretakers, and families.