Support and Resources

The resources below can help answer the questions you may have, whether it’s finding more information about nontuberculous mycobacterial (NTM) lung disease or looking for ways to talk to people like you. You can also join AboutNTM Support to help you stay up to date and give you additional support.

AboutNTM Support
NTM Information

Communication

NTM Education

Education

NTM Support

Support

Whether you are newly diagnosed or recently diagnosed, it’s important to have up-to-date information about NTM lung disease. Sign up today to receive helpful information, support, and resources, including an NTM informational fact sheet, health and wellness guide, tips for traveling, and more.

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Tools and Guides

If you have not been diagnosed

Talk to your doctor or a specialist about your lung condition and symptoms. Ask if getting tested for NTM lung disease may be right for you.

To prepare for your discussion, use the Doctor Discussion Guide to record the symptoms you’ve been experiencing, your history of lung disease, medical history, and a list of the questions you have. Then, bring the discussion guide with you to your next appointment.

Doctor Discussion Guide

Starting the dialogue isn’t always easy, but this way you know exactly what you want to talk about, and your doctor can have the information he or she needs from you.

Ask about NTM lung disease—Think you may have NTM lung disease? Download this discussion guide to help start a conversation about NTM with your doctor.

Download Doctor
Discussion Guide

If you have been diagnosed

If you’ve been diagnosed with NTM lung disease, you may have questions about your next steps, including what to expect from living with NTM lung disease.

Use this Doctor Discussion Guide to prepare for a productive discussion with your doctor.

Ask about your NTM lung disease diagnosis—Download this discussion guide to help start a conversation about your NTM diagnosis and treatment options with your doctor.

Download Doctor
Discussion Guide

Watch Real NTM Stories

You are not alone. People like you have shared their stories in hopes of spreading more awareness of this disease. Below are a few videos of real people and their stories of how NTM lung disease changed their lives.

Donna’s Story
Donna’s journey

Hear Donna’s journey

Donna was a devoted churchgoer and attentive teacher. But a cough and shortness of breath made it difficult for her to go out and enjoy the things she loved. Soon, that little cough turned into something much more drastic—coughing up blood. After a misdiagnosis, hospitalizations, and a lot of fear, learn how Donna found out what was wrong.

Jim's Story
Jim's diagnosis

Watch Jim’s road to diagnosis

Jim was living happily, doing all the things he loved. But a sudden cough and crippling exhaustion prevented him from enjoying retirement. When his cough worsened without reason, a trip to the hospital suddenly turned his world upside down. Watch what happened to Jim and how he finally got the answers he needed.

Betsy’s Story
Video: Betsy's Story

Listen to Betsy’s story

Mother. Wife. Employee. Betsy lived a normal life until an unknown illness disrupted it. Her life became consumed with doctor’s appointments, tests, medications, and coughing—all without an answer. See how difficult it was for Betsy to finally get to an NTM lung disease diagnosis.

NTM and Other Lung
Conditions Information

Bronchiectasis and NTM
clinical institutions

The clinical institutions listed below specialize in respiratory diseases, including bronchiectasis and NTM.

This list was adapted from BronchiectasisandNTMInitiative.org (accessed 4/9/2018).

Rare disease information

The National Organization for Rare Disorders (NORD) provides a unified voice for those affected by rare diseases. NORD has a long history of providing services, financial aid, and running programs to support every member of the rare disease community, patients, caretakers, and families.

Find a Specialist

If you think you could have NTM lung disease, or if you’ve already been diagnosed, you may wish to see a doctor in your area who specializes in lung disease.

Interested in receiving helpful resources, support, and information about NTM lung disease?