UPDATED 2020 NTM TREATMENT GUIDELINES*
If you think you may have NTM lung disease, it’s important to educate yourself and talk to your doctor about getting tested. The resources below can provide useful information to answer your questions about what NTM lung disease is, who is at risk, and what to expect if you’re diagnosed.
Remember to talk to your doctor or a specialist about your current lung conditions and symptoms, and ask if getting tested for NTM lung disease may be right for you.
If you HAVE NOT been diagnosed, click to download the tools below
If you’ve been diagnosed with NTM lung disease, you may have questions about how you got NTM and what happens next, including what to expect from living with NTM lung disease and treatment options. Use the resources below to help you learn more about NTM.
To help you prepare for your next conversation with your doctor about NTM lung disease, use this Doctor Discussion Guide. Starting the dialogue isn’t always easy, but this way you know exactly what you want to talk about, and your doctor can have the information he or she needs from you.
If you HAVE been diagnosed, click to download the tools below
Click to explore NTM communities for people with NTM lung disease.
If you think you have NTM lung disease, or if you've already been diagnosed, you may want to visit a clinical institution or visit a doctor in your area who specializes in lung disease.
Click to visit the clinical institutions listed below. Each specializes in respiratory diseases, including NTM.
Chapel Hill, NC
New York, NY
New York, NY
New York, NY
This list was adapted from BronchiectasisandNTMInitiative.org (accessed 10/26/2020).
Click the links below to help you find a specialist.
The below organizations offer information and helpful resources on NTM and other lung conditions.
A non-profit organization that provides patient support, medical education, and research about NTM lung disease.
The American Thoracic Society Public Advisory Roundtable (ATS PAR) is a partnership with organizations representing people affected by respiratory diseases, sleep-related conditions, or related critical illnesses. ATS collaborates with them to advance shared educational, research, care, and advocacy goals.
The American Lung Association leads the fight for healthy lungs and is America’s trusted source for education, research, and support for lung health.
A non-profit organization that helps to improve the lives of people with COPD and NTM lung disease through research, education, and advocacy programs that will hopefully lead to a cure for this disease.
Learn more about your COPD with the COPD Learn More Breathe Better® program. This program helps raise awareness and understanding of COPD, and provides educational resources.
The National Organization for Rare Disorders (NORD) provides a unified voice for those affected by rare diseases. NORD has a long history of providing services, financial aid, and running programs to support every member of the rare disease community—patients, caretakers, and families.